by Paul Pounder | Nov 10, 2018 | Conditions, Fibular Hemimelia, Our Stories, Personal Stories
I was born in 1962 and at birth was diagnosed with a congenital deformity of my lower right leg. It was much later that I was told it was called Fibular Hemimelia. I know this was difficult for mum and dad at the time. Mum felt a lot of guilt, but she has been my...
by Paul Pounder | Nov 6, 2018 | Conditions, Fibular Hemimelia, Our Stories, Personal Stories
Hi, my name is Dexter. I am 6 years old. When I was growing in my mummies tummy, my arm and my leg grew a bit differently to yours. My little arm stops at the elbow and my leg is a bit shorter than it should be because it is missing a bone! When I was a baby I had an...
by Paul Pounder | Sep 10, 2018 | Conditions, Fibular Hemimelia, Our Stories, Personal Stories
“Our first encounter of lower limb conditions was when we went for the 20-week scan with our first baby. We were expecting to see our baby again, get some scan pictures and be told everything was OK. We had read the sheet the hospital had sent out stating the...
by Paul Pounder | Sep 5, 2018 | Conditions, Hip Dysplasia (DDH), Our Stories, Personal Stories
I was surprised to read that in the UK alone, up to 2000 children a year are diagnosed with Developmental Dysplasia of the Hip (DDH), which describes a range of conditions from mild instability to total dislocation of the hip. Even more surprised to realise that early...
by Paul Pounder | Aug 5, 2018 | Conditions, Hip Dysplasia (DDH), Our Stories, Personal Stories
It was first discovered that I had bilateral Developmental Dysplasia of the Hips (DDH) at the age of three. Apparently, I had a bit of a waddle and fell over a lot. My parents kept asking the Doctors and Health Visitors about me and were brushed off with it is just a...
by Paul Pounder | Jun 7, 2018 | Conditions, Hip Dysplasia (DDH), Our Stories, Personal Stories
We have chosen to share our story to give hope to other parents and children out there during their DDH journey. We are currently sat beaming with joy as our little girl Bella has just gone and won 3 races on her first sports day! Bella was a breech baby and born via...
by Paul Pounder | May 3, 2018 | Conditions, Our Stories, Personal Stories, PFFD (Proximal Femoral Focal Deficiency)
PFFD (Proximal Femoral Focal Deficiency) Hi there, this is me Lucy with my brother and sister. I’m the little one at the front with the glasses and the cute smile. This is me at a recent Kuk Sool Won Tournament. KSW is a mixed martial art that I have been doing now...
by Paul Pounder | May 3, 2018 | Conditions, Fibular Hemimelia, Our Stories, Personal Stories
Fibular Hemimelia Leg Lengthening Niamh was born with fibular hemimelia in her left leg and four toes. Her ankle was also turned out at a 90-degree angle. The general hospital she was born in sent us home, without x-rays, saying they were sure that it was just a case...
by Paul Pounder | May 3, 2018 | Conditions, Hip Dysplasia (DDH), Our Stories, Personal Stories
Hip Dysplasia (DDH) our story – keeping it in the family When Eva was born, I was aware of Hip Dysplasia or Congenital Hip Dysplasia as it was known when I had my treatment and diagnosis, back in the 1980s. However, I wasn’t concerned about passing it on. I knew that...
by Paul Pounder | Jan 5, 2018 | Conditions, Our Stories, Personal Stories, Talipes / Clubfoot
Sharing Our Story – Bai I got in touch with Steps Charity after I wanted a second opinion on the treatment my daughter was receiving at the local hospital for her talipes. I spoke with a lovely lady called Collette, who then got me in touch with Naomi Davies at...
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