October is the awareness month for Perthes Disease! Why is it so important to raise awareness?
Perthes disease or Legg-Calve-Perthes disease as it is sometimes known, is a rare childhood condition that affects the hip. The blood supply to the hip bone is disrupted, causing bone cells to die, which erodes the hip and causes pain in the process.
Perthes is approximately 4 times as common in boys as girls and generally occurs between 4 and 8 years of age. Active children tend to be more affected. The first symptom is usually a painless limp, but symptoms can be very subtle, with a mild ache in the thigh or knee not being uncommon.
Unfortunately medical agreement on the best way to treat Perthes has not yet been reached. It is treated in various ways but pain management remains a key issues faced by many children. At times, parents are told to “wait and see” to enable the doctors to assess how to best treat their child’s condition.
As the condition is not well known, it could occur that the child is not correctly diagnosed with Perthes disease leaving the hip to erode resulting in an odd shape. The effects of Perthes into adulthood are still very much unknown. Doctors have very limited information on how many adults require a hip replacement (if any) and if the disease has had long term consequences on their daily activities.
We want to change this and support more awareness and research into Perthes disease and find the best way to diagnose and treat children. Help us to fund more awareness and research and support families and adults impacted by the condition.
How can you help us? It very simple, pick a week during the month of October and score 100 goals. You don’t need too much, a ball, two posts and a suitable place to kick your ball. You can do it on your own, with your friends, with your family. Once you set up your JustGiving page and start to raise money your name will be entered into our ‘virtual hat’ to win one of these fabulous prizes:
– Signed Manchester City FC shirt by Aguero
– Signed Boots & Gloves from Leicester City Goalkeeper, Kasper Schmeichel
– Family Pass to Alton Towers
Want to do more? Here is how you can help us even further;
- Change your social media profile photo with the Perthes Awareness Month Logo
- Share your #perthesstory online or send it to us with some photos for us to share
- Contact your local papers to raise awareness of Perthes Disease